Journey to the Center of Sylvie’s Brain

Just another weblog

Some background on the Bug April 30, 2009

Filed under: Uncategorized — janaquinn @ 2:36 am

Sylvie arrived UNfashionably early at 36 weeks 3 days, and she’s been keeping us on our toes ever since.  She was a pretty mellow baby, and aside from a few minor blips (such as her never taking a bottle), I found her to be pretty easy-going all around.  At around 5-6 months, though, her easy-going nature started becoming an issue, when I noticed she couldn’t be bothered to roll over from her back or belly, or push up on her arms during tummy time.  Nothing major, but I did mention it to my pediatrician, who recommended we get in touch with Early Intervention… after a pretty thorough evaluation, we learned that Sylvie had enough of a developmental delay in gross motor skills to qualify her for services.  She’s now been in EI for nearly 1.5 years, and has shown great improvement in many areas, including gross motor skills. As some areas improved, though, it became apparent that other skills were not emerging at the same rate. An area of particular concern has been communication- both expressive and receptive. Sylvie has always enjoyed taking up residence in “Sylvie World” every now and then, but at nearly 20 months, she still does not speak, nor does she make any real concerted effort to communicate with those around her.  She’s not particularly interested in engaging people in play or any other interactive exchange, and she sometimes acts as though she’s deaf, ignoring our voices when we call her name (recent auditory tests conclude her hearing is fine.) I brought up my concerns to our doctor at Sylvie’s 18 month well-visit, and much to my sadness and joy (yeah, at the same time- funny how that is), she agreed that there was cause for concern and referred us to several highly-regarded facilities in the area specializing in the evaluation, diagnosis and treatment of developmental disorders.  We have gone ahead and scheduled an appointment for her with LADDERS for June, and I am on pins and needles waiting for that day. In the meanwhile, her EI team has revised her IFSP, keeping in mind the possibility of more intense developmental disorders.  They will now be focusing on helping her develop her mimicing abilities as well as improve her attention span in the hopes that these two skills will make learning other skills easier. I’m thrilled to have such a pro-active, knowledgeable and willing group of therapists helping Sylvie. I almost feel like I don’t *need* the diagnosis, just so long as we’re taking steps to get her the help she needs, but I know getting a formal evaluation is critical.  So now we wait. And see. Should be interesting. In the meanwhile, I will enjoy gazing at this darling every day.



This is Sylvie. April 22, 2009

Filed under: Uncategorized — janaquinn @ 2:32 pm


We lovingly refer to her as “the bug”. Sylvie is full of love, cuddles, mischief… and mystery. For most of her life, she’s defied the traditional developmental milestone guidelines and progresses at her own leisurely pace. Recently, though, certain traits that had been thus far been chalked up to personality quirks have prompted me to evaluate her development further, to make sure Sylvie isn’t in need of greater help than we can give her. This is the story of our experience, from the vantage point of a clueless mom who never expected to embark on a journey like this.